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What is Henry
(the Blog)?
Preface
HLHS: Henry’s Little Heart
Sucks
PICU Tour
Heart Failure
Waiting
Transplant
Ever Since
Dealing with
It
Acknowledgement
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I could have written a blog about my kid – the one
born with a funky heart. But Henry (the
blog) is more than just sharing Henry’s story. Sure, it
chronicles our lives during Henry’s years in and out of hospitals, multiple
surgeries and terminal maternal hysteria.
Good times, indeed!
But I put this site up because I think there needs to
be more resources for moms of “heart kids.” There are oodles of great websites to learn more about
congenital hearts defects (CHD) and you can find several here. I don’t dispense medical advice, I share
coping advice. Rather said, I’ll
tell you what I went through so that you can breathe a sigh of relief and
say, “Well, at least I am not as crazy as that lady…”
(more)
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